A Special Day and Then Delays
Written by Alison Robinson
This last weekend Davis was feeling good and his counts were stable. We’ve come to find that there aren’t many times that his counts are good enough to be out and he feels good at the same time. And even if that happens at the same time, there are still risks of being out and about. But last weekend everything seemed to line up and we had a special opportunity to go visit a friend at Phoenix Fire station #4.
From the moment we got there to the moment we left, the fireman made our kids feel so special; with no detail left out. When we got there they gave Davis his own REAL fire helmet to keep! I think the helmet weighs as much as he does but he loves it. After getting a full tour of the station and trucks they took the kids, Amanda and I for a ride on the big ladder truck. Davis got to ride shotgun and had full control of the horn. Not sure all the neighbors or anyone driving in front of us thought it was as much fun as he did! All the kids had headphones to talk to each other and it was so fun to sit back and listen to their conversations when they thought no one is listening. Once we got back to the station they set the ladder truck up so we could go up in the bucket. Davis got to go first all by himself with the fireman. Watching him smile and wave down to us was so sweet — just a little boy enjoying himself to the fullest. After Davis was done, the other kids and I got to go up. Wow, what a view — but super wobbly!! Can’t image climbing that ladder in full gear. It was such a fun few hours. Watching Davis just be a kid hanging with Lily and his cousins was so refreshing. I’m so grateful we got to enjoy this special time together because...
As things seem to go on Davis’s journey, come Monday morning they got discouraging news. Davis’s numbers weren’t high enough to do his Chemo this week. This next round of Chemo is a big one where he gets treated every day for 5 days. As you can image lots of preperation went into this week, being that they would be at the hospital everyday for chemo. So when they were sent home to wait another week and try again next Monday, it was very discouraging. This is the first delay Davis has had in his treatments. This is something the doctors said would happen and probably happen a few more times. So now we sit here in this week of waiting. We are reminded once again that Davis’s journey is not in our hands. We are reminded how hard his body is fighting all while having a joyful smile on his face. We are reminded to continue to be thankful for all the joyful moments. We are ultimately reminded to continue to bind ourselves with Christ as He is the only stability is this unpredictable journey.
A song I had never heard before came on the radio Monday as I was driving and thinking about the news of the delay in treatment. It spoke right to me. Here’s just a part of the song-
Yes I will, lift You high in the lowest valley
Yes I will, bless Your name
Oh, yes I will, sing for joy when my heart is heavy
All my days, oh yes I will
I count on one thing
The same God that never fails
Will not fail me now
You won't fail me now
In the waiting
The same God who's never late
Is working all things out
Is working all things out
So as we sit in this week of waiting, please pray that Davis’s white blood and bone marrow counts will be high enough to do chemo next Monday. Please pray that his body would continue fighting hard, and that he would continue to laugh and experience joy-filled times just being the spunky little boy we all know and love. Pray for Lance, Amanda and Lily as they rearrange another week to hopefully pick up where they left off with the chemo schedule next week. And please…lets continue to celebrate and be thankful for the news we got last week of a clear scan!